Turning the tide for rare disease

The power of the patient voice in rare disease research

By Becky Pender

12 March 2025

Patient voice

The invisible part of me: living with PBC

By Becky Pender

25 February 2025

Turning the tide for rare disease

Rare disease champions: how Cycle Pharmaceuticals and their partner Inceptua are redefining pharmaceutical philanthropy and opening up access to novel therapies in low and middle-income regions

By Becky Pender

15 January 2025

RARE caregiving

Challenges of caring for a rare disease patient—a discussion

By Becky Pender

20 November 2024

RARE News

International Gaucher Alliance celebrates 30 years of international patient advocacy

By Becky Pender

23 September 2024