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Author: CONTRIBUTOR

RARE caregiving

Rare disease caregiver policy: what, who and when/now

By CONTRIBUTOR
25 March 2025

Sunday sessions

In His hands

By CONTRIBUTOR
16 March 2025

Patient voice

Learning to thrive: living with congenital lymphangioma

By CONTRIBUTOR
14 March 2025

Industry Insights

Launching an early access programme: influencing factors

By CONTRIBUTOR
12 March 2025

Rare insights

Living Rare in your twenties

By CONTRIBUTOR
10 March 2025

Charity & advocacy

“Lil’ Brave One” from Serbia: Empowering scientific and patient networks in the field of rare neurotransmitter disorders

By CONTRIBUTOR
5 March 2025

Science & tech

The inflection era of healthcare: where technology, data, AI, and collaboration converge

By CONTRIBUTOR
24 February 2025

Rare insights

The Gap in access to rare disease treatments for low-middle-income countries

By CONTRIBUTOR
20 February 2025

Rare insights

Patient-led research in rare diseases: How can we make this a reality?

By CONTRIBUTOR
20 February 2025

Science & tech

Enhancing clinical trial success through proactive patient advocacy and engagement

By CONTRIBUTOR
19 February 2025

RARE News

Blizzard Entertainment® Raises Over $2 Million for CureDuchenne through World of Warcraft ® charity pet program, funding lifesaving Duchenne muscular dystrophy research

By CONTRIBUTOR
12 February 2025

Turning the tide for rare disease

The transatlantic partnership advancing breakthrough science into innovative treatments for rare diseases

By CONTRIBUTOR
5 February 2025

RARE REV-inar

A blueprint to advance genomic medicine in Latin America

By CONTRIBUTOR
29 January 2025

Medical

Sepsis Research FEAT urges vigilance against sepsis this winter

By CONTRIBUTOR
28 January 2025

RARE News

Landmarks illuminate purple and blue for feeding tube awareness

By CONTRIBUTOR
28 January 2025

RARE caregiving

Considering caregiver value at JP Morgan

By CONTRIBUTOR
22 January 2025

Turning the tide for rare disease

Blood Sword by the Duncan Brothers: A mythical sword-wielding comedy to raise awareness of an underdiagnosed genetic condition

By CONTRIBUTOR
8 January 2025
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